Thursday, January 28, 2010

Thursday AM Update

Emma had another peaceful night. We saw a step change at 05:15 AM as breathing went more labored and reduced by half and heart rate doubled.

We have decided that to give up is not within her. Period.

She has now gone 7 days without food or water.

She is a testimony to the human spirit.

Kelvin

34 comments:

  1. Praying for her everyday. She is strong. She is God's beautiful creature, cherrish every moment (and I know you do).

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  2. We are lifting her and your family up in constant prayer.
    The Repman's

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  3. Emma is such a fighter. I am praying she and y'all will have a peaceful day. Love yall bunches and many many prayers.

    Ashley

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  4. We are Praying for you. I have read your blog for a long time but this is my first comment.

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  5. My heart is heavy and I am praying constantly for you all. Praying as you asked, for acute and effective grace for sweet Emma..... love to you all
    Melissa Gallender Contreras

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  6. Sweet thing - such a fighter. She is always in my thoughts and your all are constantly in my prayers. I'm praying for a day of peace. Love you.

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  7. Continually praying for peace… for precious Emma, and for her precious family. My heart aches and goes out to each of you.
    Love and hugs ♥
    Ms Becky

    And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus. Philippians 4:7

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  8. Emma loves each and everyone of you so much.That is why she doesn't go with God. That is ok. It means you get just a little more time with her. I keep praying for her peace for her pain to end. Trent prays for a miraclous healing. That is what a 10 yr.old boy wants. That is ok. Love is awesome. Love is great. Love is powerful. We love you Emma. Go with God and laugh again. Love, Ms. Suzie

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  9. Emma is a testimony to the human spirit, but she is also paying you the highest complement you could ever receive. Medically, a person without love gives their heart no reason to beat. I am not surprised she has fought so hard...Obviously, your Emma Lou has been so continually showered by your unconditional love - the way you hold and caress her, the sweet way you whisper words of encouragement and nursery rhymes in her ear, every kiss and cuddle - I do not think she fears her future, she just knows the love you have for her...and it's perfect!

    Jana

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  10. WOW! Emma is DEFINITELY a fighter! Continuously thinking of you and continuously praying!!!

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  11. Fighter in the highest sense of the word! All I can say is WOW. The human life and will to live is undeniable. I am honored to know parents like you.

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  12. Thoughts and prayers are with you and your family and Precious Emma. God Bless!

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  13. A song for Emma:

    "I can only imagine what it will be like, when I walk by Your side...
    I can only imagine, what my eyes will see, when Your Face is before me!
    I can only imagine. I can only imagine.
    Surrounded by Your Glory, what will my heart feel?
    Will I dance for you, Jesus? Or in awe of You, be still?
    Will I stand in Your presence, or to my knees will I fall?
    Will I sing 'Hallelujah!'? Will I be able to speak at all?
    I can only imagine! I can only imagine!

    I can only imagine, when that day comes, when I find myself standing in the Son!
    I can only imagine, when all I will do, is forever, forever worship You!
    I can only imagine! I can only imagine!

    Surrounded by Your Glory, what will my heart feel?

    Will I dance for you, Jesus? Or in awe of You, be still?
    Will I stand in Your presence, or to my knees will I fall?
    Will I sing 'Hallelujah!'? Will I be able to speak at all?
    I can only imagine! Yeah! I can only imagine!

    Surrounded by Your Glory, what will my heart feel?

    Will I dance for you, Jesus? Or in awe of You, be still?
    Will I stand in Your presence, or to my knees will I fall?
    Will I sing 'Hallelujah!'? Will I be able to speak at all?
    I can only imagine! Yeah! I can only imagine!

    I can only imagine! Yeah! I can only imagine!! Only imagine!!!
    I can only imagine.

    I can only imagine, when all I do is forever, forever worship You!
    I can only imagine."

    With much love for Emma's peace....

    We love you and are praying for you!

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  14. At 3:00 this morning, because I couldn't sleep, I found your blog. Of course the tears were constant as I read your journey. Although I've only known you for a very short time, a couple hours, I love you and your family. I cannot believe the heartache you have gone through and the agony you must be experiencing now. Emma definitely came to this earth, to you, your families and friends, for a reason and a purpose. I hope you are able to hold her and she can peacefully be released from her mortal body.
    -Catherine

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  15. There are no words to describe what is going through my mind after hearing about and reading your blog. There are no words that I can say that will make all of this go away, all the pain, and the impending heartbreak that is inevitable. But I believe GOD is our Healer, and I believe in miracles and I pray for a miracle when it comes to Emma. I am so very honored that I can read your thoughts and share in this with your family. Your family is constantly on my mind.

    I am especially fond..... of your FAITH!

    He gives strength to the weary! May God bless you with every breath Emma takes.

    I LOVE your family.

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  16. I heard about Emma through a friend at church, what a touching journal of such a sweet lil girls struggle. She is so lucky to have such a faithful family that have help guide her down this difficult path. I truly believe in the power of prayer and will pray for Emma and her family. May God Bless you all and keep you

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  17. This is the first time I have read your blog. My heart goes out to you. I cannot even come close to imagining what you must be going through. I have two small children of my own. I hope that Emma continues to be strong and you keep the strength to find your way through this. I pray that all of your prayers are answered.

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  18. This is the first time I have read your blog. My heart goes out to you. I cannot even come close to imagining what you must be going through. I have two small children of my own. I hope that Emma continues to be strong and you keep the strength to find your way through this. I pray that all of your prayers are answered.

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  20. Thinking of you and lifting all of you in prayer.

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  21. Hello this is Miss Whitney I just found emma blog page. I always prayed for emma every since I found out about her. And I never gave up on her. She is so sweet and so loveable. You know what god has everything in control. I believe that with all my heart. If I get a chance I'm going to make a poem about emma. Cause I love me some emma lou. Love always Miss Whitney. Ps. My email address is whitney.williams@myspace.com

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  22. Praying for a supernatural gift of grace to extend to your family.
    Emma has touched so many lives with her story and Emma's Hugs will serve to keep that alive long after she is physically gone. Just feeling so connected to you guys today.

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  23. Toughey, you are a true fighter in every sense of the word.

    Still praying for peace.

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  24. God made a perfect gift in the form of your precious daughter Emma. In this life she (as well as you, her devoted, wonderful parents) have suffered, but in Life Eternal Emma will be whole, perfect with her new Heavenly body without disease and heartache forever! Such a Blessing!

    My name is Carole Doty and I am Gavin VanderWall's grandmother/Alicia's mother. I read your blog this morning with such a heavy heart for what you are going through, but with the knowledge of God's loving kindness and mercy that sadness is turned to joy for God's promises of what will come. I will keep you all in my thoughts and prayers.

    God Bless you!

    Carole Doty

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  25. This is the first time I've read your blog and I'm so glad that I've found it. I'm praying for each of you as you walk this most difficult of all paths - to carry your precious lil girl as she walks into the presence of Jesus and her healing. I will continue to pray for you every time God brings you to my mind. God has used you to encourage me in struggles that my grandchildren are going through. Thank you for your openness and willingness to share. There is a site that might be of encouragement to you. www.caringpages.com. I pray for God's grace, peace, mercy and strength over all of your family, especially lil precious Emma.

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  26. Hello...I'm not sure how I was drawn to your lives, but I believe God guided me to you. A means beyond what I can comprehend brought me to your story and I believe it was God guiding me along to you, to learn a simple but most valuable life lesson...not once have you taken one moment for granted - you have always said your praise and have been thankful for His love and that is something that I am blessed to experience. Though Emma's physical body cannot stay on this Earth; her spirit will always remain in the hearts of those who have love in their hearts to give. I pray for your loved one and most of all pray that once Emma's wings spread and she will fly that this physical Earth will be a much better place to live because though she is small and young, through God she has reminded me how to allow God to lay the path before me and continue to be thankful for his blessings. I also pray that Heaven has the sweetest music and the most lovely angels - as I have realized Miss Emma is an angel among us. Thank you Miss Emma for your pure heart and what a blessing to hear of all of the faith and love within your family! Peace be with you always.

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  27. Praying for peace for Emma. She is such a(beautiful) warrior. God made no mistakes when Emma was created.She is perfect! Praying for courage for you and your family. I can not imagine your pain. When Emma makes it to heaven, the stars will shine brighter. She is going to make one heck of a angel.

    Lisa
    (Atlantic Canada)

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  28. Someone said here that Emma will make one heck of an Angel. To your lips do Gods ear. Emma is already an Angel, the most perfect Angel. Fly high Emma. Rock heaven. They will love you, just as we have loved you.

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  29. Please ease my mind and others who have read this post and tell me that she is on some sort of feeding tube or iv or that she is getting some form of nourishment. My prayers are with you.

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  30. For those concerned about her not eating or drinking, I'd like to share what I learned from hospice when my mom was dying. As a person moves through the dying process they lose their appetite and thirst. Soon they lose the ability to swallow much at all. That happens when the body is no longer able to digest food. The kidneys soon shut down as well. If they are given food through a tube, then it just sits in the intestines and rots. If they are given IV's they can't flush it all out because of the kidneys. The fluid then can fill the lungs making it very difficult to breathe.
    I would recommend looking up hospice care and learning about palliative care and nutrition for a dying person. This is a controversial topic on some fronts.
    I hope this helps and if what I experienced can help, then I'm happy to share.

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  31. What an awesome picture! My heart continues to ache, but Emma’s blessings continue to nurture.
    Love, hugs, and prayers to you all ♥
    Ms. Becky

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