Wednesday, February 24, 2010

Wear Your Jeans...

I've always been interested in finding a cure for diseases. I've run in the Susan G. Komen Race for the Cure 5Ks, we raised a bunch of money for the Leukemia and Lymphoma Society's Team in Training when we ran/walked the Rock n Roll marathon, have walked tons of laps for the Relay for Life here in our town, and click on the breast cancer site every day to help give away free mammograms, among other things. But there is one cure that is very near and dear to my heart now. I would love to see a cure for Batten Disease soon. There is a lot of new research going on, and I believe they are close. I pray they are. So here is something I thought everyone could do, and it won't cost you a red cent...

Wear Your Jeans....
to support World Rare Disease Day, February 28, 2010

World Rare Disease Day is a time when the community of affected children and families come together to garner support for their efforts. Please join the Global Genes Project in its support for World Rare Disease Day by wearing jeans. It's that easy!

Imagine lawyers in courtrooms, business executives in boardrooms, state legislators and others from all walks of life wearing jeans the week before or Friday (that's this Friday) before World Rare Disease Day – all to show their support for those affected by rare disease worldwide.

It can happen. And this simple act could help change the lives of children affected by rare diseases. Please also join us on Facebook to share your efforts with the rest of the world – post photos, share stories and get people excited!

So help today! Wear your jeans!

Check out these websites for more information on Rare Disease Day:

BDSRA is an official sponsor of the Global Genes Project.


  1. I will definitely advertise this on my blog! We wear jeans to work on Friday anyway, but I'll be sure to print signs and put them up at work tomorrow!

  2. Wearing my jeans, spreading the word, remembering Emma, praying for your family, believing God for a cure for Batten.
    Love and hugs and prayers,


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