We could not have asked for better fall weather this weekend! It was GORGEOUS, I tell you, BE-U-tiful!! Friday night I went to a fundraiser for Batten Disease research. Click here to learn about Will Herndon and all the great work his family and friends are doing to find a cure for Batten Disease. My friend, Aimee and I had a really good time. The event took place literally under the stars at the Lodge and Field at Rob Fleming Park in the Village of Creekside Park in The Woodlands, Texas. Several hundred people showed up for the "Country Chic" event outside in the rather cool temperatures. Translation...I got to wear my new boots and jeans but froze my boot-skootin booty off in the process! It was all for an extremely good cause, though.
Researchers are so close to a cure they can taste it! I am so excited to hear about the progress. And I read more wonderful news today! Click here to read about the good news about the Bluebird Circle and their efforts to fund research for rare diseases such as Batten Disease. I was super excited to think that I will hopefully become one of the members of this fantastic organization in June 2011.
I met some lovely ladies at my table at the event under the stars. Unfortunately, we all have Batten Disease in common. One lady has several (more than three) family members affected by the adult onset of Batten Disease, Kuffs. How devastating! Another lady at my table has a seven year old little boy, Zachary who has juvenile Batten Disease. He was diagnosed a week after her husband died unexpectedly from what they think was a blood clot! What in the world do you say after hearing news like that? My mouth just hung open, and I finally said, "I'm so sorry." I cannot fathom life, especially the past couple of years and now, without Kelvin. He is my rock. He is the one I laugh with, cry with, cling to and love. I almost hyperventilate at the thought of his absence from my life. Please pray for Michelle as she makes her way down the road ahead with Zach. Oh God, give the researchers the means and the knowledge to find a cure quickly for these precious families.
The rest of the weekend was full of birthday party fun for the kids, church, and lounging around the house. So, do tell, what did you do this weekend?
