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Wednesday, June 17, 2009

Wish I May Wish I Might

Make a Wish...

Heard of it? I'm sure you have. It's a precious organization. They grant sick kids their wishes. Kids who are diagnosed with a terminal illness. Kids who would love to go to Disney or have their own swimming pool or be a police officer for a day because that's what they wanted to be when they grew up...and they probably won't grown up. So Make a Wish is contacted and waves their magic wand, and poof! the child's wish is granted! It's really sweet.

Make a Wish brought Emma a gift this week. It's this really cool bean bag chair that has a big speaker in the back of it. It connects to the stereo and the music plays through the bean bag speakers and is supposed to calm the person who sits in it through the vibration and sound of the music. She was very calm for quite a while when we sat her in it today. She even laid her head back and relaxed for a bit which we hardly ever see her do. We are truly thankful for the gift.

Thankful for the disease which brought Make a Wish to our home, not so much! I wish I could just donate to the organzation and not have a child who is a recipient. I wish our wish could be for them to cure our baby girl and find a way for her to lead a normal life... a life free from seizures, and drool, and baby food and diapers, and constant tummy aches, and mushy muscles and a disease that has taken away all mobility and smiles and laughs and sight. I wish we would never have heard the words Batten Disease and Emma in the same sentence.
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