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Wednesday, December 10, 2008

Emma's Hugs

Here is a little bit about Emma's Hugs, Inc....

Emma’s Hugs is a 501 (c)(3) non-profit organization. Our mission is to support families and caregivers of those in hospital settings so that they can better focus on their loved one’s recovery. It is not our goal to pay off huge medical bills, but instead simply pay their parking bill, a hug of sorts.

Emma, the inspiration for Emma’s Hugs and this blog, is our third child. She was diagnosed summer of 2008 with a neurodegenerative disease, known as Infantile Batten Disease. The disease causes a loss of motor and cognitive function, blindness, and ultimately death, usually before the child's first decade. There was a special time in Emma’s life, around 18-20 months, where she gave hugs and kisses. She even met her dad at the door a few times and said “Dada” and gave him a hug. Those times are gone, but we want to somehow memorialize that sweet time in Emma's life. Through Emma’s Hugs we will share the spirit of a simple hug from a small child; sincere, innocent, without obligation and without being asked for!

Life experiences have shown us the important role caregiver’s play in their loved one's recovery. We feel strongly about our mission to support them, and we are excited to invite you to join us in spreading these random acts of kindness.

Please check out for more information. You can also find updates on Facebook and Twitter!
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