Batten Disease is one of the thousands of rare diseases that don't get much attention or funding. Maybe if enough people learn about it, that will change. Could you please post something on your blog or Facebook page about Batten Disease this weekend? You can click here to read Jenni's post about their daughter, Celia, who also has Batten Disease. There are many organizations and businesses listed on her post trying to help raise awareness and money to go toward a cure or treatment for Batten Disease. Thanks for taking the time to read.
Please visit Batten Disease Support and Research Association and Beyond Batten Disease Foundation for more information about Batten Disease and how you can help.