Friday, December 18, 2009

Angel Under the Tree

Here is our precious little angel girl sleeping peacefully under the Christmas tree.

She looks so peaceful, almost as if nothing is wrong. Oh, how I wish. Wouldn't it be nice if we really got to make a Christmas wish or tell Santa what we wanted for Christmas and it came true? Oh, how I wish there were no such thing as Batten Disease, that no child had to suffer. How I wish for a miracle healing for Emma. How I ache for her to talk and laugh and drink hot chocolate and enjoy this Christmas season. How I yearn to see her face light up when she sees the Abby Cadabby doll I found today to replace hers that was lost in the hurricane last year. How I wish I could go shopping for her and buy things a 3 1/2 year old little girl would love. I wish shopping this Christmas was fun and not heartbreaking. I wish I didn't tear up driving down the street thinking about Emma and wanting so badly for her to be well. How I wish things were just our normal crazy, bustling house with four kiddos running wild, chasing each other, wrestling around, going up and down the stairs. For now, I will wish and pray.

Here is a picture of our den this year at Christmas. What does yours look like?

Here are some sweet pictures of Carleigh and Luke with Santa. We were at a family Christmas party of some friends of ours, and they invite Santa to come in his sleigh every year. He gives all the kids a gift (moms and dads help out a little with this)and takes them for a ride in his sleigh. Luke was so mesmerized with this man. He didn't want to let him out of his sight. It was very sweet...

The other night we loaded everyone up and went to visit Santa at the mall. He was so sweet and patient with the kids and showed such concern about Emma. I like the picture we had made...


  1. Emma certainly looks like an angel sleeping under the Christmas tree! She is so precious! I wish that I could take away her pain and yours! It breaks my heart knowing what your family must be going through!

    Your den looks so inviting and comfortable! Great job decorating for Christmas!

    I love the picture of your gang with Santa too! So cute!

    Love, Hugs and Prayers!!!

  2. I wish too, Emma is such an angel. I love the Santa picture. Your family is beautiful.

  3. I love your Christmas photos, your family is beautiful. I admire how you have somehow managed to keep life running somewhat normal. I know it can't be easy. My Christmas wish would be that God's healing touch would erase Batten's forever from the planet, especially from Emma. She has stolen my heart, and my heart is broken for you all. I am still praying for a miracle.

  4. Your angel under the tree looks sooo very precious. It's hard to imagine what your family is going through and I commend you both for blogging about it here. These posts will be priceless in the years to come. And right now I'm sure they are helping others to remember the less fortunate among us and to be more sensitive and caring. I love the Santa picture with all four kids. Awesome!
    Hugs & Prayers are coming your way.

  5. Sweet picture of the kids with Santa. Emma does look like and angel under the tree.
    Emma and your family are always in my heart and prayers since I first heard of you and your walk of faith.
    Love and hugs and prayers,

  6. Christy,

    I just wanted you to know that I don't comment often, but I love reading your blog. I love the Santa picture. We had the same Santa when we went to the mall (I live in Baytown too). Emma is so beautiful. I admire your strength so much and will keep your family in my prayers.

    Sending hugs your way,


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