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Monday, November 30, 2009

Gobble Gobble

(author warning: kelvin)

Hey folks, we just got back into town from deer hunting. We were there since Thanksgiving. I'm just throwing out a quickie-post and then Christy can put up a real one tomorrow. She is enjoying some time with her girlfriends tonight.

I can offer these updates on Emma. She had a decent weekend and mostly slept (good). Every morning around 0200 she would be in a lot of pain (bad). I got to hold her several hours each night while we slept or when she was crying. I love holding her when we sleep. I curl her up in between my arm and chest and place my lips on her cheek and hum to her. We did that from 2-4 this morning. I loved it. I am privelidged to hold her; she is so awesome.

Christy said yesterday that she can't imagine Emma loosing any more weight. She will be 4 years old in March and is down to about 20 pounds (hint: don't try to picture it). We've learned enough about Batten Disease that we can wish against something, but we won't bet against it.

Oh yea, Happy Thanksgiving, gobble gobble and all that stuff. But really, we appreciate all you blog readers and friends who support us in so many ways.
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