Thursday, February 19, 2009

Baby Prep Boot Camp

Emma is so sweet. She decided to stay up all night with the exception of a little cat napping, just to remind me of what it feels like to run on fumes the following day! What a doll (she really is precious!) She cried and fussed, and I didn't know what to do for her. This morning as I fed her, I yearned to hear her talk. I wish I knew what was going through her little head. Her OT and I were just saying the other day we think she has the same little gruffy voice as her big brother! She was such a pistol. I remember when she would stand at the foot of the stairs behind the baby gate and holler for her big brother and sister. I remember when we went to the beach and had to constantly dig sand out of her mouth. She would just laugh. I remember when my biggest complaint of the day was having to dig her out of the cabinets and drawers in the kitchen and when she would climb in the rocking chair and stand in it backward. I remember when she loved nothing more than being in the big middle of all the activity her sister and brother were creating. I think she still likes to hear their activity. How I wish things were different for her and her siblings. I know Carleigh wishes Emma could play with her, and Luke doesn't understand why she can't do certain things an almost 3 year old should. They are so sweet to her though. I couldn't ask for a more precious family.

Nothing like sand and watermelon! Emma loved playing with her Great-Grandma I like to play too!
video

6 comments:

  1. I'm so sorry that Emma is dealing with such a tragic disease. My heart aches for her. You are all in my thoughts and prayers.

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  3. I enjoyed the video of your precious little ones. Glad I'm not the only one who lets her kiddos run around with underwear on their heads! We also attend Second and ever since the Sunday that you and your husband shared Emma's story with the church, we have been praying for your family.

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  4. Ther arent the right words to say to you. I cant imagine your heart ache when you remember the old days with Emma.
    You are on my heart today.

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  5. Praying for you and your sweet Emma!

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  6. I love the beach photo!
    Celia doesn't sleep much at night either... she really hasn't slept through the night since October. Some nights she's just wide awake, and playful, but more and more often she's fussy through the night.
    (My mom found Heavy Blankets online - they're weighted, and perhaps help Cel feel like she's being held, or reduce her myoclonic jerks... I can share more info if that's something you think might help Emma?)
    I hope, for all of you, that this doesn't become a routine for Emma, especially once Cora arrives and you need to be up with her, too.
    It's interesting, how thinking back about what the girls used to be able to do can be so happy and sad at the same time... In the long run, I hope those earlier memories are the ones that stick with me the most.

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