Approximately 30 million people in the U.S. are affected by some 7,000 rare diseases, most of which do not have cures or reliable treatments [like Batten Disease.]
What this group of fighters does have is hope—and the unbreakable support of friends, family and a growing number of compassionate people who want to make a difference.
Rare Disease Day is February 28th.
The Global Genes Project would like you to join the thousands of supporters all over the world by wearing jeans to raise awareness for the rare disease community. Go one step further and take a picture of yourself or your group in jeans and post it to our Facebook page. No matter how creative or how many people, you’ll be making a big statement on February 28th.